Love my life?

For the last 10 years I really loved my life. I loved what we (me and my wife) built together. I felt like I had arrived and that all the problems from before were finally banished. Ok there have been ups and downs but on the whole it’s been the best time of my life. But along came this diagnosis and that knocked me back (us actually).

Part of the problem for me was allowing myself to love my life again. I thought, how could I love my life when I have this disease hanging over me? But I was looking at it all wrong. ALS won’t kill me. Life will kill me. And that’s the same for everyone. So nothing has changed on that score.  Ok I know it looks like I am shifting the blame from ALS to life for my demise. But life kills us all eventually. Sp whats new really? Whats changed?

What has really changed is I (and we) have a massive opportunity to excel. I know that sounds management speak but that’s the best way I can put it.  And I am at my best when I have a problem to overcome. And this is a big problem to overcome and learn to live with.

Plenty of others have life challenges and they meet them head on and get on with life. And that is where I am. Medically, ALS is a critical illness but in real terms, its something that can be managed and controlled. 

I am inspired by what I see.  By people coping with this condition and other conditions. There is a chap here where I work (yes I still work) and he is on sticks. And he struggles to walk. I often speak to him if I pass him and I think to myself, if he has such a positive and cheery outlook why can’t I? Just because I have ALS doesn't mean that I have to be down? I am not used to be being down and it does not suit me. So this is my way to love my life again.