Thursday, 12 January 2017

Its not all about you.




Its also those around us. Those that care for us and love us.  Its very hard to care for a nightmare. Imagine you looking after someone and they act up and create mayhem. 

And I get that this condition can make you a total nightmare. But this is not good. They are your loved ones and they are losing you.  Losing you to this awful disease. They will be going thru the same grief stages as you are. And there is no quick fix or right way to behave. Just be mindful that someone is trying to do the best they can for you.


There is a vicious circle that can develop and its one that feeds off each other. That is guilt and burden. You may feel guilt that you’re a burden on someone. Or you may feel guilt that you cant ever do the right thing for someone. Guilt is a useless emotion. Unlike anger (another useless emotion) does not motivate us to actually do something. It just makes us shrink. So if you’re a ALS Warrior like me, accept the help that is given to you with a cheery wave and show that you appreciate what is being done for you. A thank you and a show of appreciation goes a very long way. No one likes to feel undervalued and believe me, you really need this person. So look after them. 


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